Your data

What information is collected by an IAPT service?

Your IAPT service collects information about you and the care you receive, including the assessments, results of tests and your answers to questionnaires. This enables your progress to be monitored and future care planned. This information may be shared with other health professionals involved in your care, so that you get the best possible care. If you would like to see the information collected about you or find out more about how the information is stored and used locally please speak with the people who are treating you.

What information is collected nationally?

Some of this information collected is reported nationally to give a picture of service delivered across the country, to check that quality standards are similar everywhere. No information that could reveal a patient’s identity is used in national reports. These reports only show summary numbers of, for instance, patients receiving different types of treatments and it is impossible to identify any person seen by any IAPT service from them. Security of patient information is very important in IAPT services.

How is the information used nationally?

The information collected is used to check that:

  • services are available to those who need them
  • an appropriate range of NICE compliant treatments is provided
  • patients achieve positive outcomes from treatment.

National reports offer huge service delivery benefits by checking, for example, numbers of referrals received, time taken to access services, the type of treatments used and the outcomes of those treatments. Also, under the Equality Act 2010, the NHS has to monitor personal characteristics and check everyone has equal access to services and is not discriminated against in any way.

How we keep your information safe?

The IAPT service stores all information safely and securely and sends national reporting information safely to a secure central data storage area.All data collected is subject to the strict rules of confidentiality, laid down by Acts of Parliament, including the Data Protection Act 1998 and the Health and Social Care Act 2001 and the NHS Care Record Guarantee

Do you need to use my information?

IAPT national reports offer the most benefit when they use information from as many patients as possible, because this creates the most accurate picture of services. If, however, you do not want your information included in national analyses, please tell the people who are treating you and they will make sure your information is not used.